Message on Jen’s Birthday

Message on Jen’s Birthday

Message on Jen’s birthday Today we wake with heavy, heavy hearts… it is our beautiful Jen’s birthday, her much awaited 21st. Nothing could be more painful … our beautiful girl is not here with us … but her spirt is everywhere. We have been dreading the arrival of...
Getting there! A (very) brief update

Getting there! A (very) brief update

Hello everyone 🙂 I’m finally getting there… eating, breathing, even slowly walking 😀 Very soon I’ll be able to leave this ward. I’ll be nursed by my parents at our temporary home, close to hospital, and but come in often for treatment. I have...
A Second Chance at Life

A Second Chance at Life

Nobody has heard from me in a while. Often when you don’t hear from someone for a while, people may joke that they are dead or missing. In my case that joke might have been quite tasteless because Pulmonary Hypertension is a degenerative lung disease, and after 4...
Crossing lines

Crossing lines

So I have just returned from an unexpected week in hospital. Last week I had an awful chest infection and was at home in bed, resting as much as possible, but essentially doing OK. Unfortunately, my medication pump alarmed suddenly on Wednesday and after quickly...
Before the storm

Before the storm

By: Gabi Lowe (Jen’s mom)  Its June 2014 already and way too long since I blogged. This been a year of extraordinary challenges and adapting to the Flolan has been a big part of this. Flolan is only one of the 8 medications Jenna takes every day but it is far...