As 2016 draws to an end I really want to take this opportunity to thank all of you for your loyal support over the last couple of really tough years. The Jenna Lowe trust is gaining such momentum and we really feel so humbled and grateful to be continuing Jenna’s legacy. From the patients attending our monthly support groups,  to the educational material we have produced (in 3 languages) and the mobility equipment we have managed to provide to PH patients in need. All of this makes such a difference to the lives of PH patients who potentially, without the trust, would be left to deal with this orphan disease in isolation.

December 2016 support group at The PH Clinic, E16 Grooteschuur

This is only achievable due to you, the people who support us, AND of course the remarkable team whom we work with at Groote Schuur. A special thanks goes out to Dr Greg Symons who works tirelessly to provide the best care for PH patients; and Sister Pepe Cooper who never gives up advocating and working for what the patients need.

Nurse Lizzie with the two home O2 machine The Jenna Lowe Trust bought for the PH Clinic

A heartfelt thank you and extremely sad farewell to our delightful Nurse Lizzie who leaves for England in January.  Lizzie has played a pivotal role in Jenna’s care and in the building and growing of The Jenna Lowe Trust and will be sorely missed. Lizzie you will forever have a very special place in our hearts and be part of our JLT family… we wish you nothing but the best for your move.  

As the years progresses I have to admit it doesn’t get any easier coping with Jenna’s loss ….. but the Jenna Lowe Trust injects optimism and hope for other PH patients and helps us to make some sense of her suffering.

We look forward to a meaningful and good 2017 as the Trust grows and we work towards having the first state lung transplant conducted at Grooteschuur Hospital

We wish you all a happy, safe and peaceful festive season.

With so much gratitude,
Gabi, Stu and Kristi

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