Cycles and Cyclists – May 2017 Update

Cycles are a constant … one of the few things we know for sure is that everything will change; and one of our challenges is the constant need to recalibrate, rethink and adjust. Having just received our PBO number (930052755); The Jenna Lowe Trust is entering a whole...

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Farewell to Lizzie and 2016

As 2016 draws to an end I really want to take this opportunity to thank all of you for your loyal support over the last couple of really tough years. The Jenna Lowe trust is gaining such momentum and we really feel so humbled and grateful to be continuing Jenna's...

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Jenna Lowe Trust Update – June 2016

Two weeks ago I received a phone call from Professor David Badesch in the USA. Fondly remembered by the Lowe family simply as “David” he is one of the world’s foremost experts on Pulmonary Hypertension. Prof Badesch is a Professor of Medicine in the Division of...

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Message on Jen’s Birthday

Message on Jen’s birthday Today we wake with heavy, heavy hearts… it is our beautiful Jen’s birthday, her much awaited 21st. Nothing could be more painful … our beautiful girl is not here with us … but her spirt is everywhere. We have been dreading the arrival of...

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Getting there! A (very) brief update

Hello everyone 🙂 I'm finally getting there... eating, breathing, even slowly walking 😀 Very soon I'll be able to leave this ward. I'll be nursed by my parents at our temporary home, close to hospital, and but come in often for treatment. I have been off oxygen for 5...

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A Second Chance at Life

Nobody has heard from me in a while. Often when you don’t hear from someone for a while, people may joke that they are dead or missing. In my case that joke might have been quite tasteless because Pulmonary Hypertension is a degenerative lung disease, and after 4...

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Crossing lines

So I have just returned from an unexpected week in hospital. Last week I had an awful chest infection and was at home in bed, resting as much as possible, but essentially doing OK. Unfortunately, my medication pump alarmed suddenly on Wednesday and after quickly...

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Before the storm

By: Gabi Lowe (Jen's mom)  Its June 2014 already and way too long since I blogged. This been a year of extraordinary challenges and adapting to the Flolan has been a big part of this. Flolan is only one of the 8 medications Jenna takes every day but it is far more...

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