Crossing lines

Crossing lines

So I have just returned from an unexpected week in hospital. Last week I had an awful chest infection and was at home in bed, resting as much as possible, but essentially doing OK. Unfortunately, my medication pump alarmed suddenly on Wednesday and after quickly...

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Before the storm

Before the storm

By: Gabi Lowe (Jen's mom)  Its June 2014 already and way too long since I blogged. This been a year of extraordinary challenges and adapting to the Flolan has been a big part of this. Flolan is only one of the 8 medications Jenna takes every day but it is far more...

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Returning home and re-adjusting …

Returning home and re-adjusting …

              Written with permission by Gabi (Jen's mom) Jenna has been discharged from hospital and is sleeping in her own bed! Given the extreme levels of  complexity around beginning this new treatment home is by far the best and...

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Global Expertise comes to South Africa …

Global Expertise comes to South Africa …

An update from Jen’s mom (Gabi)  Shoo! It’s been a very hectic time and we are way overdue for a detailed update which Jen has requested I write ... so here goes!  Action needed ... The last three months have been worrying, busy and yet exciting times for our family....

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A very brief update

A very brief update

So I haven’t blogged in a while. Partly because I’ve been busy and tired, but honestly the chief reason is because there is much going on that I still need to wrap my head around. I guess it’s hard to write about things that you haven’t come to terms with yourself, so...

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A hurtful ‘comfort’

A hurtful ‘comfort’

We've all heard the saying. “What doesn't kill you makes you stronger.” It is said at times of crises and pain, stress and trauma. In fact, this is such a popular expression that it featured in a recent chart-topping hit by the renowned Kelly Clarkson. Many people...

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Positivity

Positivity

It's incredible that my family have managed to claw from this disease a couple moments of beauty and wonder, in meeting and connecting with amazing people, and in doing exciting things in this campaign. I love knowing that there is something positive to be done for...

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